A RARE JOURNEY

A Rare Journey is a powerful documentary about Ægir Þór, an 11-year-old boy from Höfn in Hornafjörður, who has been diagnosed with Duchenne muscular dystrophy, a rare muscle disorder that affects his mobility. In this documentary, we follow Ægir Þór on an extraordinary journey across Iceland, where he meets other children living with rare diseases. Together, they share their stories, hopes, and challenges, building strong connections through their shared experience of navigating life with serious conditions. The film offers a deep and moving insight into the lives of children facing rare illnesses, while also celebrating their strength, courage, and resilience.